I had a mixed bag of good and bad on Mother's Day. We finally got our family pictures done yesterday. I can't wait to see them! I was waiting for that to happen before I started Gavin on the steroids. Sunday morning we started him and it gave him a tummy ache. I've been told that it's very unsettling in your stomach and he kept saying he was going to throw up. We need to get a routine down and his body needs to get used to the medicine. On a positive note, he is really excited that he gets to take medicine everyday.
I did have a wonderful Mother's Day. CJay made me a folded 1 dollar bill ring, which was really clever. Conner gave me a pottery cup and paper book that he made at school and a card he made in church. Karl gave me a beautiful antique looking garnet ring with small diamonds surrounding it. Garnet is CJay's birthstone. He said I will probably get a different ring representing the other boys birthstones the next two years. It is our version of a Mother's Ring(s). :-) I will try to post a picture with this post soon. He is so good to me!
Showing posts with label Gavin. Show all posts
Showing posts with label Gavin. Show all posts
Wednesday, May 11, 2011
Friday, April 15, 2011
Happy Birthday Dad!
My Dad would have turned 79 today. I decided to celebrate with an ultimate chocolate cake from Wegmans...which is a family favorite. We sang Happy Birthday and it was a sweet, touching moment.
I've been feeling pretty good the past week. When I think of the things we've faced, I am amazed that I am not in bed with the blinds closed refusing to get up. I have a strong testimony that Heavenly Father is carrying me at this time. It reminds me of that poem called footprints and it makes my heart smile. I am extremely grateful for all of our friends and family, especially my darling husband and boys. I feel very blessed. I've been asking for a few years for ways to build my testimony and know that the gospel is true...well, be careful what you wish for. I have no doubt in my mind now.
It's been just over 2 months since we found out about Gavin and I feel like it's been 10 years. I am living in the moment, enjoying every minute and concentrating on being happy. It is working!
Thinking of my Dad today...he is missed, but I feel him near. Happy Birthday Dad! I love and miss you tons! xoxo
I've been feeling pretty good the past week. When I think of the things we've faced, I am amazed that I am not in bed with the blinds closed refusing to get up. I have a strong testimony that Heavenly Father is carrying me at this time. It reminds me of that poem called footprints and it makes my heart smile. I am extremely grateful for all of our friends and family, especially my darling husband and boys. I feel very blessed. I've been asking for a few years for ways to build my testimony and know that the gospel is true...well, be careful what you wish for. I have no doubt in my mind now.
It's been just over 2 months since we found out about Gavin and I feel like it's been 10 years. I am living in the moment, enjoying every minute and concentrating on being happy. It is working!
Thinking of my Dad today...he is missed, but I feel him near. Happy Birthday Dad! I love and miss you tons! xoxo
Wednesday, April 6, 2011
Struggles on the Horizon
Okay, this is going to be a short and very uncomfortable post. It's been a very hard year for us. They say bad things happen in three's and if that is true...I thank goodness that we've had our third!
On Valentine's Day of this year we learned that our youngest, Gavin, has muscular dystrophy. We were also given the strong impression from the doctors that is was most likely Duchenne, which is the worst kind. It was definately the worst day of my life and I've said that 3 times in the last year. Our fears were confirmed yesterday, he has been officially diagnosed with DMD.
I've been wanting to post about it for weeks, but I've been too busy denying it. It has broken my heart. But I must carry on for my children and my husband. We are finding our new normal...with lots of guidance and information from the several special needs families in our ward. I believe that we were meant to be here and we have SO much support from our friends and family.
I am learning so much and have been relying on Heavenly Father to get me through each day. I am sad that Gavin won't have the life that we wanted for him but I feel very blessed to have been given the sacred job of taking care of one of His most valiant spirits. Gavin is loved by everyone who knows him and will be his whole life. Our bodies aren't meant to last forever. It is what we learn and the bonds we form that will carry on into eternity.
PS. If you get a chance to donate to MD, please do so and think of Gavin. <3
On Valentine's Day of this year we learned that our youngest, Gavin, has muscular dystrophy. We were also given the strong impression from the doctors that is was most likely Duchenne, which is the worst kind. It was definately the worst day of my life and I've said that 3 times in the last year. Our fears were confirmed yesterday, he has been officially diagnosed with DMD.
I've been wanting to post about it for weeks, but I've been too busy denying it. It has broken my heart. But I must carry on for my children and my husband. We are finding our new normal...with lots of guidance and information from the several special needs families in our ward. I believe that we were meant to be here and we have SO much support from our friends and family.
I am learning so much and have been relying on Heavenly Father to get me through each day. I am sad that Gavin won't have the life that we wanted for him but I feel very blessed to have been given the sacred job of taking care of one of His most valiant spirits. Gavin is loved by everyone who knows him and will be his whole life. Our bodies aren't meant to last forever. It is what we learn and the bonds we form that will carry on into eternity.
PS. If you get a chance to donate to MD, please do so and think of Gavin. <3
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